46

Feeling embarrassed over the fact that you wet yourself

Yesterday I had a seizure and vertigo. I was embarrassed about the fact that I wet my pants and needed a clean pair. All my aunt did was scold me and say, "Will you hurry up and put them on right? The paramedics don't have all fucking day to wait for you.

Does anybody who reads this post think that kind of comment is abusing someone with a disability?

#45

Being told by a family member that they're going to have you put away in a "home for retards." 

#44

 The emotional and physical abuse your body goes through having epilepsy is very difficult, if not impossible, to explain to someone who has never gone through it. Trying to explain the overwhelming emotions you have after having a seizure is frustrating 

Now you see me, now you don't!

 This is a true fact for me when it comes to dealing with epilepsy!

What you CAN see:

Love

Triumph

Laughter

Peace

Calm

Safety 

Joy

What you CAN'T see:

Flashbacks

Stress

Paranoia

Triggers

Trauma

Anxiety

Depression

Fear

Exhaustion

Insomnia

Pain

-jessi

43

When a new doctor talks to you about having a VNS implant as if it's your only hope of having control over seizures. 

When a doctor was telling me the best possible type of treatment would be the VNS implant, she was sounding as if that would be my only hope of having a life seizure-free. I don't like the word surgery to begin with. Plus there's no telling whether it would or wouldn't work. Everyone's different, I think.

42

When the injuries you get from your seizures make simple things like brushing your hair or getting dressed intensely painful. 

The summer before my senior year of high school, I had a grand mal seizure and ended up not only with a concussion and bad sunburn, but I had dislocated my shoulder. I couldn't lift it without being ready to scream.
Trying to put my shirt on hurt.
Trying to lift my arm so I could brush my hair hurt.
So I had to rely on my nan to help me do such things for the rest of the vacation, which very much sucked! :(

Valentine's Day

February 14th is coming up. Yup, that's right. It's Valentine's Day.

Now hang on a minute! Before you say that you hate it, let me say that it's not necessarily about JUST showing love for your significant other or your feelings about someone you're interested in. 

Would you be surprised if I told you Valentine's Day was really named after a patron saint who had epilepsy? Believe it or not, it's totally true. 

Valentine is, in fact, the German word for "fallen." At one time, epilepsy was considered "falling sickness" because of the fact that a lot of seizures caused those that had it to fall and lose consciousness. 

There are other stories that the bishop named Valentine von Terni freed the son of an orator from an epileptic seizure as well. 

Anyhow, when you think of all the hearts, cards, candy, and gifts for your significant other, do not think of just how you love your significant other. Love the fact that you are lucky to be healthy. And if you do indeed have epilepsy, love the fact that you're able to get through a day without having a seizure. :)

St. Valentine, pray for us!